In India, congenital heart disease affects approximately 2.5 lakh newborns annually. Photograph used for representational purposes only
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As we celebrate Valentine’s Week, showering love and affection on our dear ones, another crucial aspect of heart health often goes unnoticed. This week also marks Congenital Heart Awareness Week, a time to shed light on the struggles and triumphs of individuals born with heart defects.
In India, congenital heart disease (CHD) affects approximately 2.5 lakh newborns annually, making it a significant public health concern. This translates to about 1 in 100 births, with some studies suggesting that the incidence may be even higher in rural areas. The most common types of CHD include atrial septal defects, ventricular septal defects, and tetralogy of Fallot.
Despite advancements in medical technology, CHD care remains a challenge, particularly in rural areas where access to specialised healthcare is limited. Delayed diagnosis and inadequate treatment can lead to complications, such as respiratory distress, failure to thrive, and even death.
Early intervention
However, there are beacons of hope. Recently, a team of doctors in Bengaluru successfully performed a heart transplant on a 14-month-old infant, marking a milestone in pediatric cardiac care and setting a new record for the youngest heart transplant recipient in India. Such achievements demonstrate the progress being made in CHD treatment and management.
But the journey of CHD patients extends far beyond medical interventions. These individuals often face significant psychosocial challenges, including anxiety, depression, and social isolation. A study published in the Indian Journal of Pediatrics found that children with CHD experienced higher levels of anxiety and depression compared to their healthy peers.
Mental health aspects
Moreover, the mental health of parents and caregivers should not be overlooked. The emotional toll of caring for a child with CHD can be overwhelming, leading to stress, anxiety, and burnout. A study published in the Journal of Pediatric Nursing found that parents of children with CHD experienced high levels of stress and anxiety, which can impact their ability to provide optimal care.
It is essential to recognise the importance of comprehensive care, encompassing not only medical treatment but also emotional support and counseling. This can include individual and family therapy, support groups, and educational programsmes.
Furthermore, CHD patients require equal opportunities for education and employment to lead fulfilling lives. Government initiatives and policies can play a vital role in providing these individuals with the necessary support and resources. By promoting inclusive education and employment opportunities, we can empower CHD patients to reach their full potential.
As we celebrate love and relationships this Valentine’s Week, let us also acknowledge the brave hearts of CHD patients and their families. By spreading awareness and promoting comprehensive care, we can work towards creating a more inclusive and supportive society for all.
Together, let us beat the odds and show our love and support for those living with CHD. Let us recognise the resilience and strength of these individuals and their families, and let us work towards creating a brighter future for all.
(Dr. Atul Surendra Prabhu is a consultant paediatric cardiologist at Narayana Heath City. [email protected])
Published – February 13, 2025 05:47 pm IST